Cross-cultural development of the EORTC QLQ-SWB36: a stand-alone measure of spiritual wellbeing for palliative care patients with cancer.
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Authors
Vivat, BellaYoung, Teresa
Efficace, Fabio
Sigurdardóttir, Valgerđur
Arraras, Juan Ignacio
Åsgeirsdóttir, Gudlaug Helga
Brédart, Anne
Costantini, Anna
Kobayashi, Kunihiko
Singer, Susanne
Issue Date
2013-05
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Palliat Med 2013, 27(5):457-69Abstract
No existing stand-alone measures of spiritual wellbeing have been developed in cross-cultural and multiple linguistic contexts.Cross-cultural development of a stand-alone European Organisation for Research and Treatment of Cancer (EORTC) measure of spiritual wellbeing for palliative care patients with cancer.
Broadly following EORTC Quality of Life Group (QLG) guidelines for developing questionnaires, the study comprised three phases. Phase I identified relevant issues and obtained the views of palliative care patients and professionals about those issues. Phase II operationalised issues into items. Phase III pilot-tested those items with palliative care patients. Amendments to the guidelines included an intermediate Phase IIIa, and debriefing questions specific to the measure.
Phase III pilot-testing recruited 113 people with incurable cancer from hospitals and hospices in six European countries and Japan.
A provisional 36-item measure ready for Phase IV field-testing, the EORTC QLQ-SWB36, has been developed. Careful attention to translation and simultaneous development in multiple languages means items are acceptable and consistent between different countries and languages. Phase III data from 113 patients in seven countries show that the items are comprehensible across languages and cultures. Phase III patient participants in several countries used the measure as a starting point for discussing the issues it addresses.
The EORTC QLG's rigorous cross-cultural development process ensures that the EORTC QLQ-SWB36 identifies key issues for spiritual wellbeing in multiple cultural contexts, and that items are comprehensible and consistent across languages. Some cross-cultural differences were observed, but data were insufficient to enable generalisation. Phase IV field-testing will investigate these differences further.
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http://dx.doi.org/10.1177/0269216312451950http://pmj.sagepub.com/content/27/5/457.full.pdf+html
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Archived with thanks to Palliative medicineae974a485f413a2113503eed53cd6c53
10.1177/0269216312451950
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