• English
    • íslenska
  • English 
    • English
    • íslenska
  • Login
View Item 
  •   Home
  • Journal Articles, Peer Reviewed (Ritrýndar vísindagreinar)
  • Icelandic Journal Articles (Peer Reviewed)
  • View Item
  •   Home
  • Journal Articles, Peer Reviewed (Ritrýndar vísindagreinar)
  • Icelandic Journal Articles (Peer Reviewed)
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

Browse

All of HirslaCommunitiesAuthorsTitleSubjectsSubject (MeSH)Issue DateJournalThis CollectionAuthorsTitleSubjectsSubject (MeSH)Issue DateJournal

My Account

LoginRegister

Local Links

FAQ - (Icelandic)FAQ - (English)Hirsla LogosAbout LandspitaliLSH Home PageLibrary HomeIcelandic Journals

Statistics

Display statistics

Þetta var erfiðasta hlutverk sem ég hef fengið: áhrif alzheimer-sjúkdóms á aðstandendur og reynsla þeirra af þjónustu

  • CSV
  • RefMan
  • EndNote
  • BibTex
  • RefWorks
Thumbnail
Name:
Þetta var ....pdf
Size:
342.0Kb
Format:
PDF
Download
Average rating
 
   votes
Cast your vote
You can rate an item by clicking the amount of stars they wish to award to this item. When enough users have cast their vote on this item, the average rating will also be shown.
Star rating
 
Your vote was cast
Thank you for your feedback
Authors
Tara Björt Guðbjartsdóttir
Elísabet Hjörleifsdóttir
Issue Date
2019-12

Metadata
Show full item record
Other Titles
“This was the most difficult role I have taken on”: lived experiences of close family members as caregivers of a loved one with alzheimer and their experiences of the service provided
Citation
Tara Björt guðbjartsdóttir, Elísabet hjörleifsdóttir.Þetta var erfiðasta hlutverk sem ég hef fengið: áhrif alzheimer-sjúkdóms á aðstandendur og reynsla þeirra af þjónustu. Tímarit hjúkrunarfræðinga. 2019;95(3):71-79.
Abstract
Bakgrunnur: alzheimer-sjúkdómur er form heilabilunar. fylgikvillar sjúkdómsins eru persónuleikabreytingar sem versna jafnt og þétt og kalla á stöðugt aukna þörf fyrir umönnun. aðstandendur eru helstu umönnunaraðilar um leið og þeir takast á við þungbæra sorg sem hefur áhrif á andlega og líkamlega heilsu þeirra. Tilgangur: Tilgangur rannsóknarinnar var að kanna reynslu nánustu aðstandenda af umönnun ástvina með alzheimer-sjúkdóm og reynslu þeirra af fenginni þjónustu. Aðferð: rannsóknin var eigindleg. Viðtöl voru tekin við fjórtán einstaklinga þar sem stuðst var við hálfstaðlaðan viðtalsramma. greining á texta var gerð með innihaldsgreiningu og hann flokkaður samkvæmt innihaldi og sameinaður í meginþema og yfir- og undirþemu sem lýstu reynslu þátttakenda í gegnum sjúkdómsferlið ásamt reynslu þeirra af þjónustunni í ferlinu. Niðurstöður: niðurstöður gáfu vísbendingar um að djúp sorg einkenndi allt sjúkdómsferlið. hún fylgdi öllum gjörðum og ákvörðunum aðstandenda og eftir andlát tók við nýtt sorgarferli. Erfiðast og sárast var þegar óhjákvæmilegt var að flytja ástvin á öldrunarheimili. Þemagreining sýndi yfirþemað: erfiðleikar aðstandenda alzheimer-sjúklinga eru margvíslegir vegna breytinga á hlutverki. fimm meginþemu mynduðu samfellu í reynsluferli aðstandenda frá greiningu til lífsloka ástvinar þeirra. hvert meginþema var byggt á nokkrum undirþemum. Ályktanir: niðurstöður gefa til kynna að til þess að árangur náist í umönnun og þjónustu sem veitt er alzheimer-sjúklingum og þeirra nánustu er nauðsynlegt að hafa innsýn í þá djúpu sorg sem fylgir sjúkdómnum. Stuðningur og ráðgjöf til alzheimer-sjúklinga og aðstandenda þeirra þarf að vera í mun fastari skorðum en hún er í dag. Bjóða þarf upp á úrræði sem styrkja einstaklinginn bæði andlega og líkamlega og taka upp ákveðna stefnu í málefnum þeirra er greinast með þennan sjúkdóm og ástvina þeirra. Lykilorð: aðstandendur, alzheimer-sjúkdómur, álag, líðan, erfiðleikar, hjúkrunarheimili, samskipti.
Background: alzheimer’s disease is a form of dementia. Complications of the disease are deterioration appearing as behavioural changes and increased need for care. family caregivers deal with complicated grief affecting their psychological and physical health. Aim: The aim of the study was to examine the experiences of close family members as caregivers of a loved one with alzheimer and their perspectives on the service provided. Method: a qualitative method was utilized. fourteen interviews were conducted using a semi-structured interview-frame. The text was analysed with the methods of content analysis and categorised into a main theme, themes and subthemes describing participants experiences throughout the disease process as well as their experiences of the service provided through the course of the disease. Results: results indicated that deep grief characterised the whole disease trajectory. relatives’ decisions and actions were shaped by grief and after the death of their loved one a new process of grief began. The most difficult and hurtful experience was having to transfer the loved one to a nursing home. Thematic analysis revealed an overarching theme: family caregivers of Alzheimer patients experience various difficulties because of role changes. five main themes formed continuity in the family experiences from the time of diagnosis to the end of life of their loved one. Each theme contained few sub-themes. Conclusion: results indicate that to achieve success in the care and service provided for individuals with alzheimer and their close family members, insight into the overwhelming grief associated with the disease is essential. Support needs to be far more structured than it is today. Solutions need to exist which strengthen both psychological and physical well-being of those diagnosed with the disease and their loved ones. Keywords: relatives, alzheimer, distress, health, difficulties, nursing home, communications.
Description
To access publisher's full text version of this article, please click on the hyperlink in Additional Links field or click on the hyperlink at the top of the page marked Download
Additional Links
https://www.hjukrun.is/timaritid/greinasafn/grein/2019/12/03/Ritrynd-grein-Thetta-var-erfidasta-hlutverk-sem-eg-hef-fengid-Ahrif-alzheimer-sjukdoms-a-adstandendur-og-reynsla-theirra-af-thjonustu/
Collections
Icelandic Journal Articles (Peer Reviewed)

entitlement

 

DSpace software (copyright © 2002 - 2022)  DuraSpace
Quick Guide | Contact Us
Open Repository is a service operated by 
Atmire NV
 

Export search results

The export option will allow you to export the current search results of the entered query to a file. Different formats are available for download. To export the items, click on the button corresponding with the preferred download format.

By default, clicking on the export buttons will result in a download of the allowed maximum amount of items.

To select a subset of the search results, click "Selective Export" button and make a selection of the items you want to export. The amount of items that can be exported at once is similarly restricted as the full export.

After making a selection, click one of the export format buttons. The amount of items that will be exported is indicated in the bubble next to export format.