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dc.contributor.authorRobertson, Svala Berglind
dc.contributor.authorHjörleifsdóttir, Elísabet
dc.contributor.authorSigurðardóttir, Þórhalla
dc.date.accessioned2021-11-10T11:14:59Z
dc.date.available2021-11-10T11:14:59Z
dc.date.issued2021-08-12
dc.date.submitted2021-11
dc.identifier.citationRobertson SB, Hjörleifsdóttir E, Sigurðardóttir Þ. Family caregivers' experiences of end-of-life care in the acute hospital setting. A qualitative study [published online ahead of print, 2021 Aug 12]. Scand J Caring Sci. 2021;10.1111/scs.13025. doi:10.1111/scs.13025en_US
dc.identifier.pmid34382701
dc.identifier.doi10.1111/scs.13025
dc.identifier.urihttp://hdl.handle.net/2336/621949
dc.descriptionTo access publisher's full text version of this article, please click on the hyperlink in Additional Links field or click on the hyperlink at the top of the page marked Downloaden_US
dc.description.abstractBackground: Acute hospital settings are generally not considered adequate places for end-of-life care, but terminally ill patients will continue to die in acute medical wards in the unforeseeable future. Aim: The aim of this study was to investigate family caregivers' experiences of end-of-life care in an acute community hospital in Iceland. Methods: Fifteen in-depth qualitative semi-structured interviews were conducted with participants who had been primary caregivers. The transcribed interviews were analysed using thematic content analysis. Findings: Findings indicated that the acute hospital setting is not a suitable environment for end-of-life care. Effective communication and management of symptoms characterised by warmth and security give a sense of resilience. Three main themes emerged: (1) Environmental influences on quality of care; (2) Communication in end-of-life care; (3) The dying process. Each of the themes encompassed a variety of subthemes. Conclusions: Findings suggest that effective communication is the cornerstone of quality of care in the acute hospital environment and essential for establishing a sense of security. The severity of symptoms can deeply affect family caregivers' well-being. Acknowledging and appreciating the meaning of respect and dignity at the end-of-life from family caregivers' perspective is vital. Keywords: acute hospital settings; bereavement; communication; end-of-life care; environment; family caregivers; grief; palliative care.en_US
dc.description.sponsorshipScience Fund of the University of Akureyri, Icelanden_US
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.urlhttps://onlinelibrary.wiley.com/doi/10.1111/scs.13025en_US
dc.rights© 2021 The Authors. Scandinavian Journal of Caring Sciences published by John Wiley & Sons Ltd on behalf of Nordic College of Caring Science.
dc.subjectacute hospital settingsen_US
dc.subjectbereavementen_US
dc.subjectcommunicationen_US
dc.subjectend-of-life careen_US
dc.subjectenvironmenten_US
dc.subjectfamily caregiversen_US
dc.subjectgriefen_US
dc.subjectpalliative careen_US
dc.titleFamily caregivers' experiences of end-of-life care in the acute hospital setting. A qualitative study.en_US
dc.typeArticleen_US
dc.identifier.eissn1471-6712
dc.contributor.department1Palliative Home-Care Unit, Landspitali - The National University Hospital of Iceland, Reykjavik, Iceland. 2Department of Nursing, University of Akureyri, Akureyri, Iceland. 3Department of Accident and Emergency, Akureyri Regional Hospital, Akureyri, Iceland.en_US
dc.identifier.journalScandinavian journal of caring sciencesen_US
dc.rights.accessOpen Access - Opinn aðganguren_US
dc.departmentcodeONC12
dc.source.journaltitleScandinavian journal of caring sciences
refterms.dateFOA2021-11-10T11:15:00Z
dc.source.countrySweden


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