The Nordic Common Data Element repository for describing cancer data
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Issue Date
2009
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Int. J. Metadata, Semantics and Ontologies 2009, 4(4):232-8Abstract
The aim of the Nordic Common Data Element Project is to facilitate convergence towards a common metadata standard in cancer in the Nordic countries. The experience of installing, learning and using the open software suite, Cancer Data Standards Repository (caDSR), developed by the National Cancer Institute's Center for Bioinformatics, NCICB, in the USA is reported. The caDSR is a metadata repository including Common Data Elements (CDE) used by NCI-sponsored organisations. The object of this work is to develop a database of metadata for medical data elements, referred to as the Nordic Common Data Element Project (NCDEP) and to establish a common classification of data elements used in daily clinical practice and trials. The experience using the tools to define data elements for a Pathology Report (PR) for breast cancer is reported, along with how the tools were used to define alternative values and definitions in Icelandic.Description
To access publisher full text version of this article. Please click on the hyperlink in Additional Links fieldAdditional Links
http://dx.doi.org/10.1504/IJMSO.2009.029227ae974a485f413a2113503eed53cd6c53
10.1504/IJMSO.2009.029227
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